Father Dingle Links.htm
Before you can be classified
with systemic lupus erythematosus, at least four of the following disorders must be
present.
I understand that originally they had 4 of 70 some, reduced to 4 of 50 or so, when I started in
lupus 25 years ago, it was 4 of 14, and now they say 4 off 11.
Do you have any of these
symptoms?
Butterflies are beautiful;
however, if you notice a butterfly shaped rash "Malar
rash" across your cheeks and nose, it could be one of the symptoms.
It may be "shaped" but not your idea of "butterfly shaped"
Discoid rash red rash (or
color change on the face) on sun-exposed face, forearms, dorsum of hands. Sun Precautions claim to have the only FDA-approved spf30
fabric. http://www.sunprecutions.com
- Photosensitivity and
LupusErythematosus sensitive to the sun. People who use sunscreen may run a greater risk of
sun-related skin cancer because the sunscreen delays sunburn, thereby encouraging users to
stay out in the sun longer than they would otherwise, findings from a European study
suggest--read about it>http://www.intelihealth.com/enews?204529
- also http://www.weather.com/health/sunpro.html
- Untitled
LUPUS: A Quiet Killer Hi, my name is
Lisa Peters and I am a student at Lake Forest College. I am majoring in biology and hope
to continue on to medical school. http://www.lfc.edu/~peterlm/
- Achy or swollen joints and muscle pain--you are young but
was that old "Arthritis" trying to mess with you?
- Swollen glands
- Raynaud's phenomenon--color change on fingers or toes hurting from cold or stress--"hurting when you reach into the refrigerator"
15 facts about -
a disorder of the small blood vessels that feed the skin, most often affecting the
extremities. Skin may turn from white to blue to red and the affected area may feel numb,
tingly or cold. This article includes ways to prevent attacks.
- Unexplained fever
- Unexplained fits or hallucinations. Some Doctors waste
valuable time and add insult to injury when they prejudged these two signs and treat the
sufferer as "another young Black over-dosed on drugs--probably some new stuff out
there in the hood". Blacks who are working at the hospital or clinic may put their
two cents in--even when they are from the same neighborhood and know the family.
- Convulsions
- Depression, mood swings that always seem to swing one way--why?
- SerositisRenal disorder--unexplained kidney problems
- Oral ulcers--mouth sores/ulcers
- Edema--swelling in legs or around eyes
- Weight loss
- Hematologic disorder--low blood count
- Unusual loss of hair>>see hair.htm
Extremely tired for no reason Not
"lazy", not "yuppie fatigue"--just
tired in a way that only a lupus patient can understand. An average person saying,
"I'm tired" means my batteries are draining down--A Lupus patient, saying,
"I'm tired" means that her plug has been pulled--there ain't no more power--no
more juice. If you are on the job or at college, you need a safe place where you can
get a short rest and be back on your feet. At home, get to bed. Rest is the
best treatment.
- Yes, Chronic fatigue syndrome (CFS) can wear you out and be extremely devastating and
incapacitating; however, when you have
Lupus you have the full measure of
CFS's devastation and incapacitation plus a life threatening combination of everything under the sun, including
the sun and it's photosensitivity.
Chronic
Fatigue Syndrome
Recent research shows a link to conditions that
cause abnormally low blood pressure. Chronic
Fatigue Syndrome Fact Sheet <<read
about it
We all get tired; most of us at times have felt depressed. But the enigma known as chronic
fatigue syndrome (CFS) is not the ups and downs we experience in everyday life.
Repeated miscarriages
False/positive syphilis
test. If you have taken a blood test and
been told that you have syphilis and you are sure
beyond any doubt that you do not have syphilis,
then you may have lupus, a bad disease that can trick the blood test.
Many lupus patients have had this false/positive test report. A greater problem and insult arises when you are a young
black girl * the statistics say, "...most syphilis cases occur in black
populations" * your doctor influenced by statistics, believes the test * your parents
and pastor want to believe you but have doubts * the social stigma of veneral disease
stops you from talking about it--so you play it safe and take the penicillin if you are
not allergic to it.
If you were right and it was a false/positive for syphillis, it may have signaled that you may have lupus and lost valuable time in delayed diagnosis and treatment. The July 17th '98 issue of the Science Journal reports
that Doctors now have new diagnostic tests for syphilis.
Abdominal pain
Chest pain with deep breathing
Persistent Pain Is Felt Universally
Pain
is among the most common and the most personally compelling reasons for seeking medical
attention. People seek health care for pain not only for diagnostic evaluation and symptom
relief, but also because pain interferes with daily activities, causes worry and emotional
distress, and undermines confidence in one's health. When pain persists for weeks or
months, its broader effects on well-being can be profound. Psychological health and
performance of social responsibilities in work and family life can be significantly
impaired. Invisible Symptoms. This is a true story .. 21 Oct 98
Click on another site on symptoms. http://www.lupusny.org/news2.htm
Symptoms according to H. Michael Belmont, M.D. Medical
Director, Hospital for Joint Diseases
What other body language and
signs told you that something was wrong? E-mail me at lupus@gate.net
Primary- Care Doctors and/or
gynecologists don't routinely screen for lupus,
even when women do make their symptoms known>>read
more at http://www.lupusny.org/news2.htm
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People with lupus should always consult with their physician before
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